Lorenzo’s House

This week we’ve got a guest blog from Lorenzo’s House, including insight from a family member who has benefitted from their support.

Lorenzo’s House is a global, virtual non-profit organisation that empowers sons, daughters, children and families navigating young-onset dementia through healing in community & advocating for dementia justice.

Lorenzo’s House provides free virtual support programmes for children, young people, and young adults (ages 4-44+) who have a parent affected by young-onset dementia. We support families at every stage of the journey – from the first signs of brain change and diagnosis through the early, middle, and later stages of the condition, as well as after the loss of a loved one. We also educate professionals to become better informed about the unique challenges of young-onset dementia and its impact on families.

WE HEAL through our three pillar support programmes:

  • MATCH: one-on-one, caregiver to caregiver connection with a peer who understands. To cure isolation, and strengthen mental and emotional wellness through shared insights, resources and friendship.
  • CLUBS: are our monthly age-appropriate virtual spaces for sons, daughters, children (8-44+) and their families (female carepartner spouses and male carepartner spouse spaces) affected by young-onset dementia to find community, share resources and exchange tips.
  • SUMMIT: our worldwide virtual youth-led event, designed to educate and empower-connecting youth living a common experience and building dementia advocates and thought leaders.

WE ADVOCATE through our NEXTGEN Advocacy Movement:

  • NEXTGEN: A global advocacy movement that drives Dementia Justice through building community, raising awareness and ending stigma around young-onset dementia (YOD). Led by sons, daughters and children with lived-experience – and passionate allies, we are no longer invisible and silent, instead seen and heard and changing the way the world views dementia. Join NEXTGEN

Hear from one of our daughters in our community, Georgia, about her journey with young-onset dementia and finding community at Lorenzo’s House:

I’m Georgia, an aspiring writer from Kilbirnie, Scotland, and my mum had young-onset dementia. She was diagnosed last January at age 59, but had noticeable symptoms since late 2022. She unfortunately passed away this February at just 60 years old.

When my mum’s dementia journey began and ended, I was just in my early 20s. My experience supporting my mum was very difficult, it was really hard to see her declining, slowly losing abilities she had before, and feeling depressed. It was a lonely experience personally, and as a family. It was almost impossible to get age-appropriate care when my mum’s symptoms progressed, it was hard for all of us to get the support we needed.

Photo of a family at a wedding

Mum softened emotionally after her symptoms began in late 2022. When I asked my parents for a cat in 2024, she was fully supportive of me which I really appreciated. We went on holiday to Paris as a family last summer, it was lovely to enjoy that time with Mum and see her enjoying herself.

I was struggling to find support as a daughter in her 20s with a parent dealing with dementia as most resources I found were helping children under 18 or helping people in their 40s+ deal with their partner or parent with dementia. I had a meeting with a Dementia UK Admiral Nurse (who was a huge help throughout our journey as a family), and she recommended Lorenzo’s House to me. After my first contact and video call with them, I felt I’d finally found what I was looking for all along!

I’ve felt so supported by everyone at Lorenzo’s House since I joined them, it’s a family that I’m very glad I’m a part of and will continue to be a part of to help others in a similar situation!

Thanks to Georgia for sharing her experience and to Lorenzo’s House for telling us about what they do. To find support and get connected or learn more about Lorenzo’s House, follow their link here.

You can also follow Lorenzo’s House on social media:

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