{"id":1101,"date":"2026-06-04T06:00:00","date_gmt":"2026-06-04T06:00:00","guid":{"rendered":"https:\/\/askneurology.com\/index.php\/2026\/06\/04\/the-voice-of-lived-experience-shaping-future-allied-health-professionals\/"},"modified":"2026-06-04T06:00:00","modified_gmt":"2026-06-04T06:00:00","slug":"the-voice-of-lived-experience-shaping-future-allied-health-professionals","status":"publish","type":"post","link":"https:\/\/askneurology.com\/index.php\/2026\/06\/04\/the-voice-of-lived-experience-shaping-future-allied-health-professionals\/","title":{"rendered":"The Voice of Lived Experience. Shaping Future Allied Health Professionals"},"content":{"rendered":"<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-large\"><a href=\"https:\/\/letstalkaboutdementia.wordpress.com\/wp-content\/uploads\/2026\/06\/bridge.jpg\"><img fetchpriority=\"high\" decoding=\"async\" width=\"320\" height=\"212\" data-attachment-id=\"7637\" data-permalink=\"https:\/\/letstalkaboutdementia.wordpress.com\/2026\/06\/04\/the-voice-of-lived-experience-shaping-future-allied-health-professionals\/bridge-2\/#main\" data-orig-file=\"https:\/\/letstalkaboutdementia.wordpress.com\/wp-content\/uploads\/2026\/06\/bridge.jpg\" data-orig-size=\"320,212\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;1&quot;,&quot;alt&quot;:&quot;&quot;}\" data-image-title=\"bridge\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/letstalkaboutdementia.wordpress.com\/wp-content\/uploads\/2026\/06\/bridge.jpg?w=320\" src=\"https:\/\/letstalkaboutdementia.wordpress.com\/wp-content\/uploads\/2026\/06\/bridge.jpg?w=320\" alt=\"\" class=\"wp-image-7637\" \/><\/a><\/figure>\n<\/div>\n<p class=\"wp-block-paragraph\"><em>\u201cVisiting Alzheimer Scotland\u00a0gave students valuable insight into how third sector organisations operate in practice. Hearing from fellow students supported peer learning while exploring the charity\u2019s work in fundraising, engagement and post\u2011diagnostic support brought classroom learning to life.\u00a0 We are very grateful for our ongoing partnership in developing a dementia\u2011informed AHP workforce in Scotland.\u201d\u00a0Ashleigh Gray<strong>, <\/strong>Practice Education Lead, Edinburgh Napier University<\/em><\/p>\n<p class=\"wp-block-paragraph\"><strong>Introduction<\/strong><\/p>\n<p class=\"wp-block-paragraph\">On the 30th of March 2026, Pre-Registration first year, Master students of Occupational Therapy and Physiotherapy from Edinburgh Napier University attended Alzheimer Scotland, National Centre in Edinburgh as a part of their community visit.<\/p>\n<p class=\"wp-block-paragraph\">Occupational Therapy students from Queen Margaret University; Emma and Aoife \u2013 who are writing this very blog! \u2013 delivered a presentation on The Voice of Lived Experience, informing the Edinburgh Napier students about the Scottish Dementia Working Group and the National Dementia Carers Action Network. As a welcome to Alzheimer Scotland, the students received a folder of self-management resources that can support their work now and in the future, with an emphasis on occupational therapy and physiotherapy resources found at <a href=\"http:\/\/www.alzscot.org\/ahpresources\">www.alzscot.org\/ahpresources<\/a> and <a href=\"http:\/\/www.cpcs.online\/\">www.cpcs.online<\/a> and peer to peer resources developed by the <a href=\"https:\/\/www.alzscot.org\/campaign-for-change\/active-voice\/scottish-dementia-working-group\/\">Scottish Dementia Working Group<\/a>. The students had a tour of our day services and brain health hub with presentations about the Role of Fundraising and Engagement and Alzheimer Scotland Post Diagnostic Support and the role of the link worker. \u00a0Thank you to Elaine Hunter for coordinating and welcoming the students to an informative day!<\/p>\n<p class=\"wp-block-paragraph\"><strong>Setting the Scene<\/strong><\/p>\n<p class=\"wp-block-paragraph\">We began the presentation about the voice of lived experience by firstly introducing ourselves and informing the Edinburgh Napier students that we are Queen Margaret University students on placement, so there was no pressure on either side!<\/p>\n<p class=\"wp-block-paragraph\">We wanted this presentation to highlight the people at the heart of dementia care and the important work they complete for community outreach. The presentation brought together the work of two influential campaign groups- the Scottish Dementia Working Group (SDWG) and the Nation Dementia Carers Action Network (NDCAN). Both of these active voice groups play a vital role in shaping dementia practice, policy and the public understanding in Scotland. We felt it was important for the Edinburgh \u00a0Napier students to understand what these groups campaign for. As professionals, they will encounter people living with dementia and carers, they will also be following legislation and policy that has been shaped by these groups.<\/p>\n<p class=\"wp-block-paragraph\">We wanted to complete a group activity after the introductions as to who the active voice groups are, and what they do, where we asked:<\/p>\n<ul class=\"wp-block-list\">\n<li>How would you practice as a professional to ensure the person living with dementia\u2019s voice is heard?<\/li>\n<li>How can you make your practice person-centred?<\/li>\n<li>If you were a member of SDWG what would you campaign for?<\/li>\n<li>If you were a member of NDCAN what would you campaign for?<\/li>\n<\/ul>\n<p class=\"wp-block-paragraph\">After giving time to answer, we wanted to hear feedback so we could understand where we needed to expand on information and context about these groups. Moving onwards from the group questions, we included a page of quotes from the active voice members as it was extremely important to highlight their opinions and experiences.<\/p>\n<p class=\"has-text-align-center wp-block-paragraph\"><em>\u201cBy treating those you will work with in your careers as \u2018individuals\u2019, supporting and encouraging them to be themselves and do what\u2019s important to them, you will be able to help ensure they are not defined by their situation, but that they continue to live their best life possible.\u201d<\/em> Stuart, SDWG<\/p>\n<p class=\"has-text-align-center wp-block-paragraph\"><em>\u201cThere is a big opportunity for you as AHPs to see yourselves in the role of consultants. By that I mean passing on some of your skills to the carer so that they can, to some extent, reinforce and multiply the value of your work.\u201d<\/em> Frank, NDCAN<\/p>\n<p class=\"wp-block-paragraph\">The aim of these groups is to spread awareness and we equally wanted to follow this.<\/p>\n<p class=\"wp-block-paragraph\">After the discussion of answers, reflections and feedback, we explained a little more in depth about what NDCAN and SDWG have achieved. This was a fantastic opportunity that can challenge the students\u2019 preconceptions and show them the extensive work active voice groups have been involved with. For example, SDWG have presented at global conferences across Europe and Asia and contributed to international dementia discourse. As a result, Scotland is now recognised as a global leader in dementia policy and advocacy. Members from NDCAN have sat on the national boards for both the new Dementia Strategy and the Carers Act implementing their voices of experience to promote change. <\/p>\n<p class=\"wp-block-paragraph\">Finally, we asked the Edinburgh Napier students if they had any questions about our time on placement (none of them have been on a placement in their Master course yet!). We explained how this placement focuses on public health and the spreading of information. It is a project based placement in line with the charity values, and most importantly, speaking to those directly living with dementia and carers.<\/p>\n<p class=\"wp-block-paragraph\"><strong>Lasting Impact on Students Perception on dementia<\/strong><\/p>\n<p class=\"wp-block-paragraph\">From the interactive segment of the presentation we provided a QR code which brought the students to a page to answer the following questions: \u2018How would you practice as a professional to ensure that the person living with dementia\u2019s voice is heard?\u2019 \u2018how can you make your practice person centred?\u2019 \u2018If you were a member of NDCAN what would you campaign for?\u2019, \u2018If you were a member of SDWG what would you campaign for?\u2019. We could see that students seemed to take away a strong commitment to person centred, ethical practice informed by lived experience. QR feedback highlighted the importance of speaking directly to the person, listening with patience, while still appropriately involving family and carers. <strong><\/strong><\/p>\n<p class=\"wp-block-paragraph\">Students reported gaining a wider understanding of dementia services in Scotland, post diagnostic support, and how to signpost effectively. Feedback described the presentations as powerful and moving, noting the passion and care demonstrated by speakers. Engaging with lived experience supports the development of critical thinking, compassion, and ethical decision making, while reinforcing the value of co production and ensuring the service user voice remains central to practice.<strong><\/strong><\/p>\n<p class=\"wp-block-paragraph\">Some answers from the students:<\/p>\n<p class=\"wp-block-paragraph\"><strong>How would you practice as a professional to ensure that the person living with dementia\u2019s voice is heard?\u2019<\/strong><\/p>\n<p class=\"wp-block-paragraph\">\u201cUnderstand what is important to them and what their priorities are in daily living. Involve the individual and their family in decision making. Be patient and ask clear questions regarding care.\u201d<\/p>\n<p class=\"wp-block-paragraph\"><strong>If you were a member of NDCAN what would you campaign for?<\/strong><\/p>\n<p class=\"wp-block-paragraph\">\u201cFunding, awareness, destigmatization, accessibility, education for new practitioners, early diagnosis education\u201d<\/p>\n<p class=\"wp-block-paragraph\"><strong>If you were a member of SDWG what would you campaign for?<\/strong><\/p>\n<p class=\"wp-block-paragraph\">\u201cImprove public awareness and education of dementia and ways to <a>accommodate for<\/a> individuals with dementia in public settings. Reduce stigma and allow fair treatment.\u201d<\/p>\n<p class=\"wp-block-paragraph\"><strong>Lasting impact<\/strong><\/p>\n<p class=\"wp-block-paragraph\">The end\u2011of\u2011day evaluation revealed just how effective the visit was for these students. Many highlighted that <em>\u201cseeing the level of care and consideration from everyone involved was really powerful and moving\u201d<\/em> and valued learning about the real work of SDWG and NDCAN. Others appreciated gaining <em>\u201ca wider understanding of the services in Scotland\u201d<\/em> and the role of link workers.<\/p>\n<p class=\"wp-block-paragraph\">Key takeaways centred on applying a person\u2011centred, stigma\u2011free practice\u2014students spoke about using respectful language, understanding individual experiences, and confidently signposting people to support. Several noted they now recognise the wider support services around dementia care and feel better equipped to contribute meaningfully in future clinical roles.<\/p>\n<p class=\"wp-block-paragraph\"><strong>Personal Takeaways<\/strong><\/p>\n<p class=\"wp-block-paragraph\">Through this experience, we learned the importance of careful planning, clear wording, thoughtful layout, and understanding our audience. We have learned how the work from third parties is collaborative and effective to creating resources, raising awareness and most importantly, keeping those living with dementia and carers at the heart of their work. This enabled us to effectively communicate valuable information in the hopes these students will take forth into practice. Delivering the session reinforced our appreciation of the courage required to pose open\u2011ended questions to a quiet room.<\/p>\n<p class=\"has-text-align-center wp-block-paragraph\"><em>\u201cI have a great appreciation for sharing the knowledge I have gained since being on placement with Alzheimer Scotland. To engage with other students and demonstrate my learning has been beneficial for raising awareness on destigmatisation, resources available and the improvement of service delivery\u201d<\/em> Emma Galloway, 4<sup>th<\/sup> year Occupational Therapy Student, Queen Margaret University<\/p>\n<p class=\"wp-block-paragraph\"><strong>Contributor<\/strong>: Aoife Gordon and Emma Galloway, Queen Margaret University, Occupational Therapy students<\/p>\n<p class=\"wp-block-paragraph\"><strong>Enjoyed this blog? Tell us more. We love feedback.<\/strong><\/p>\n<p class=\"wp-block-paragraph\">Please spend 1 minute completing this short anonymous feedback form to allow us to make our blog posts even better in 2026. Thank you<\/p>\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/forms.office.com\/e\/HqqcAcMPD5\">AHP Let\u2019s Talk About Dementia Blog Feedback Form \u2013 Fill out form<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>\u201cVisiting Alzheimer Scotland\u00a0gave students valuable insight into how third sector organisations operate in practice. Hearing from fellow students supported peer [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":1102,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1101","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dementia"],"_links":{"self":[{"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/posts\/1101","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/comments?post=1101"}],"version-history":[{"count":0,"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/posts\/1101\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/media\/1102"}],"wp:attachment":[{"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/media?parent=1101"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/categories?post=1101"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/askneurology.com\/index.php\/wp-json\/wp\/v2\/tags?post=1101"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}